Diagnosis and Early Symptoms

At the age of 21, I was diagnosed with Eosinophilic Oesophagitis (EoE). I had never heard of this condition before; I only knew that every time I tried to eat, I struggled to swallow. It took nearly two years from the onset of my first symptoms to receiving the correct diagnosis. It all began with mild swallowing difficulties — for instance, I used to feel the peel of certain fruits, such as grapes or apples, sticking in my throat. Even when I tried to swallow, it felt as though my throat lacked the strength to do so. Over time, the situation worsened. Eating simple foods like grilled chicken or fish became difficult. These experiences led to a growing fear of eating, whether I was with family or alone. The fear of choking made every meal a nerve-racking experience.

Coping with Daily Eating

Meals became a challenge that required careful preparation. I always kept a 2-litre bottle of water beside me, taking a large sip after every bite to help me swallow. Breakfast was usually the easiest meal, as my oesophagus was less inflamed after a night without food. As the day progressed, swallowing became more difficult. By evening, I could manage only a few spoonfuls of puréed food. Eventually, even drinking liquids became complicated. Swallowing while breathing or clearing my throat was painful and difficult. My throat often felt constantly bloated and inflamed.

Emotional Struggles

Those were extremely challenging times. I experienced conflicting emotions that left me frustrated and exhausted. I was afraid to eat alone, worried that I might choke with no one around to help me. Yet, at the same time, I wanted to be alone, because I felt the pressure of my family and friends watching me anxiously during meals. Their constant concern, though loving, made me feel under pressure to show signs of improvement — to give them hope — but that was rarely possible. It was emotionally draining for all of us.

Coping Mechanisms

Whenever I struggled to swallow or when food became stuck, I would start jumping or walking around. I had once heard that if you choke and cannot breathe, jumping might move the diaphragm, compressing the lungs and forcing air out, which could help dislodge the food. I never knew whether this explanation was medically accurate or simply a coincidence, but somehow, it worked for me, and I relied on it during difficult moments.

Diagnosis and Treatment

Eventually, I received the correct diagnosis of Eosinophilic Oesophagitis and began an elimination diet. After following the process carefully, the results showed that my EoE was triggered by: wheat, eggs, rice, rye, barley.This discovery marked the beginning of my journey towards managing the condition and reclaiming a better quality of life.